The Australian CF Camp Est. 2012, Closed group, 300+ Members.
"Group for people with CF in OZ to have a chat. Can't do the camps in person any more so let's have the next best thing - a virtual camp :)" https://www.facebook.com/groups/287655604643546/ Sister5Roses Est. 2018, Closed group, 130+ Members. "This group is a place for young Australian women with CF (18+) to connect with others who share a similar journey." https://www.facebook.com/groups/599600560379574/ CF Talk (Adults) Est. 2018, Closed group, 120+ Members. "CF Talk (Adults) is a safe space for adults with cystic fibrosis (CF) to share stories, concerns and the highs and lows of managing CF and life." Managed by CFWA. https://www.facebook.com/groups/cftalkadults/ Australian CF Hub Est. 2019, Closed group, 100+ Members. "The Australian CF Hub is a place for Australian adults living with CF to connect, share ideas, and have our voices heard. We strive to create an inclusive and respectful space for all." https://www.facebook.com/groups/2950018355073670/ CFers@Le Grande Club Alfred Resort Est. 2011, Closed group, 40+ Members. An Informal discussion group for CF patients at The Alfred Hospital, Melbourne. https://www.facebook.com/groups/alfresort/ The Alfred Hospital Cystic Fibrosis advocacy group Est. 2017, Closed group, 110+ Members. Advocating for CF patients at the Alfred Hospital, Melbourne. https://www.facebook.com/groups/1831886737081305/ Monash Advocacy Group Est. 2020, Closed group, 5+ Members. A group for people attending the Adult CF clinic at the Monash Hospital, Melbourne. Advocating for CF patients. https://www.facebook.com/groups/598496530999486/ CF'ers Who Train Hard Est. 2018, Closed group, 600+ members (Australian and international). A group for adults with CF to "share our stories related to exercise and training; to lift each other up, share our successes and support each other in the tough times." https://www.facebook.com/groups/816774905191740/ CF Support Australia Est. 2012, Closed group, 1800+ Members. "A group for all people with CF, carers and supporters of those with Cystic Fibrosis in Australia. Feel free to ask questions, post news or talk about anything related to CF ." https://www.facebook.com/groups/287655604643546/ CF Research News Australia Est. 2012, Public group, 700+ Members. "This is a group where people can discuss research news relating to CF, with an Australian focus at times (eg local trials)." Note: Public group. https://www.facebook.com/groups/130421340438389/ |
Do you know a CF social media group that isn't listed here? Please contact us and let us know.
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