May is Cystic Fibrosis awareness month. For a third year now, West Australian writer, Sandi Parsons, is helping to raise awareness through her 31 Days of Cystic Fibrosis. Despite CF: Kylie De Pedro After a year of trying for a baby, Kylie sought the help of a naturopath with a specialty in fertility. Three months later, she was pregnant. While Kylie expected the birth to be difficult and hard on her lungs, she breezed through the pregnancy and birth. "I was healthiest I had been in years during my pregnancy," said Kylie. After Caprice was born, Kylie wondered about having another baby. There aren't many women with CF in Western Australia who have had multiple births — and they all had a relatively high lung function. Kylie decided if she could raise her lung function to 45%, the risk would be worth it. 45% proved to be a target that was out of reach, and the idea of a second child seemed impossible. Then six weeks after an IV admission, Kylie found out she was pregnant. "I struggled the entire pregnancy trying to figure out if I was doing the right thing or not. Was I bringing two lives into this world only to leave them without a mother, or was I providing my daughter with the best gift in life, a sibling to get through life with?" Unlike Caprice's birth, Rylan's was traumatic. "He coded and ended up getting wheeled away being resuscitated. I didn't meet him for 4 hours. It was horrible." Kylie is resting her future hopes on the modulator Trikafta. Trikafta is a CFTR modulator that helps defective CFTR proteins work more effectively. But it's expensive, and the government has not yet approved its listing on the PBS. "I wonder how my two beautiful children would cope without me, but I am 110% certain I would not be alive without them. I would have given up for sure." By Sandi Parsons
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9/24/2022 11:03:51 am
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10/1/2022 07:12:15 pm
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May 2021
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